Childhood Brain & Spinal Cord Tumors A Guide for Families, by Tania Shiminski-Maher, Patsy McGuire Cullen, Maria Sansalone

By Tania Shiminski-Maher, Patsy McGuire Cullen, Maria Sansalone

Adolescence mind & Spinal wire Tumors, the main whole father or mother consultant to be had, contains unique and special scientific information regarding either benign and malignant mind and spinal twine tumors that strike young ones and teens. moreover, it deals day by day useful recommendation on find out how to do something about systems, hospitalization, friends and family, tuition, social and fiscal matters, conversation, emotions and, if remedy isn't really winning, the tough problems with demise and bereavement. Woven one of the scientific info and the sensible recommendation are the voices of folks and youngsters who've lived with melanoma and its remedies. As many oldsters have already discovered, recommendation from "veteran" mom and dad could be a lifeline. acquiring a uncomplicated knowing of themes equivalent to scientific terminology, how medicines paintings, universal unintended effects of chemotherapy, and the way to paintings extra successfully with scientific group of workers can merely increase the standard of lifestyles for the total relations ache in addition to their baby. Having mom and dad describe their very own emotional ups and downs, how they coped, and the way they molded their family members existence round hospitalizations could be a great convenience. simply realizing that there are different young children on chemotherapy who refuse to consume something yet tacos or who've common rages could make one think much less by myself. mom and dad who learn this e-book will stumble upon clinical proof easily defined, recommendation to ease their lifestyle, and instruments to be a robust recommend for his or her baby. comprises vast assets and a pull-out clinical record-keeper.

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Extra info for Childhood Brain & Spinal Cord Tumors A Guide for Families, Friends & Caregivers

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I was lucky not to know this. M. a nurse called the waiting room. She was out of surgery and the neurosurgeon would be coming to talk with us. The man with the silent eyes approached. I rose, knowing that what he said would change me. If she had survived the surgery, what would her life be like? If she had not survived, how would I? He approached the waiting room with a lightness in his step. Coming straight to the point he said, “Your daughter had an astrocytoma. Her surgery was longer than normal because the tumor was embedded in her brainstem.

Twenty-five years ago, very few children with CNS tumors were cured. Technological advances, including computer-assisted surgical planning, advanced imaging techniques, newer chemotherapy drugs, and focused radiation therapies, have changed that. Over the last two decades, because of these advances as well as research and participation in clinical trials (see Chapter 9, Clinical Trials), many children are now long-term survivors. EMOTIONAL RESPONSES 11 Families often discover a renewed sense of both the fragility and beauty of life after the diagnosis.

The primary physician sent Jennifer to the hospital for a CT scan. I figured it would be in a couple of weeks due to the holiday weekend. He said within two hours. The nurse was drawing Jennifer’s blood, when another nurse came in and said that the hospital wants Jennifer down there as soon as 28 CHAPTER 2: THE BRAIN AND SPINAL CORD possible. They were holding the radiologist there, waiting on Jennifer. We left the primary physician’s office around 11:00, and at noon, I was informed that Jennifer had an abnormality found on the brain.

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